I am an advocate, a caregiver and a parent. Each title hard won through experience, commitment and serendipity.  1 in 10 Americans are affected by a rare disease. My husband Mike was one.  I am one of the 14.9 million family caregivers in the United States who care for someone with Alzheimer’s or related dementia.  You can even count me twice – caregiver as wife and daughter.  I am a tenacious mother, a support-group leader, and a consultant in the healthcare industry.  An ordinary love story has brought me to an extraordinary circumstance. It is not a place I expected to be, but I have chosen to embrace it, knowing that if I keep moving forward I will find that love is out there.

Read more about my story here

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