Katie has shared her story of love, loss and resilience as an advocate and an educator specializing in frontotemporal degeneration (FTD), caregiving, and the impact of dementia care on families. The following are links to videos of recent speaking engagements:
A Night With the Arts for FTD: Inaugural Gala & Art Show to benefit The Frontotemporal Disorders Unit. October 23, 2015. Over 200 patients, family members, clinicians, colleagues, and friends gathered in the Wharf Room of the Boston Harbor Hotel to celebrate the work of The Frontotemporal Disorders Unit and raise funds to support clinical care and research efforts towards a cure for Frontotemporal Disorders. To learn more about the upcoming gala to benefit The FTD Unit, go to: Facebook.com/ftdunitgala #FTDGala2015
Katie’s 2015 Gala Remarks: October 23, 2015. Katie was proud to co-chair the committee to plan the inaugural gala & art show to benefit The Frontotemporal Disorders Unit. See Katie’s remarks to the crowd that evening. “Mike said that one word can change everything. Tonight let’s prove him right!”
Love Is Out There: May 2015. This short film was created by a dynamic team of students from Boston University’s College of Communications HotHouse Productions. Students dedicated their time, passion, and technical expertise to create a way for Katie to share her story with a wider audience and raise awareness for FTD, caregiver issues, and Love Is Out There. This film was honored as Runner Up in the American Academy of Neurology (AAN) 2016 Neuro Film Festival and featured in the first Rare Disease Film Festival, DISORDER in 2017.
Lux in Tenebris. May 2015. Katie was honored with the 2015 Lux in Tenebris Award from Saint Thomas Aquinas High School in Dover, NH. The Lux in Tenebris Award was established to give recognition to a person of the St. Thomas Aquinas High School community who has made significant, enduring contributions to humanity in keeping with the ideals and mission of St. Thomas, specifically with respect to service and sacrifice.
These contributions are primarily seen as activities which promote the welfare of humankind, especially through the alleviation or elimination of pain and suffering and toward seeking a just world. Nominees who made significant, enduring contributions to humanity at the cost of personal risk and/or sacrifice are particularly considered for this award. The humanitarian activities may form a lifelong pattern or be expressed in a single, widely noted occurrence.
*Katie is considered to be a member of the STA community because her late husband, Michael Brandt, was a teacher in the Theology department for two years.
National Alzheimer’s Project Act (NAPA) Advisory Council Meeting, Washington, DC: Katie provided public comment to the NAPA council to urge them to keep issues of related dementia central to NAPA’s work. Katie is the second speaker. July 2014
Massachusetts General Hospital Frontotemporal Dementia Diagnosis Video Summary. Summer 2013, Katie worked with MGH Communications staff to develop this short summary of Mike’s diagnosis. A short description of FTD is included by Dr. Dickerson.
Boston Rare Disease Day 2014 – Health4Brands & HAVAS Worldwide produced a video to showcase Boston’s events to raise awareness for this international day of recognition
February 28, 2014 – Katie joined a panel of distinguished speakers, included former Boston mayor Ray Flynn, to acknowledge Rare Disease Day 2014 and share her family’s story.